8/24/2015

Dear Lexi, It’s the night before your big brother Mark’s 11th birthday and I can’t help but feel blessed. Not just because of how lucky we have been on your journey, but by how lucky we are in life period. Mark is an amazing big brother. He loves you so much. He would do anything … Continue reading 8/24/2015

Sort of results

Dear Lexi, I am going to keep this short because I am EXHAUSTED, but figured I’d better update. We got a call from Your endocrinologist this afternoon. The results are in early from your MRI and to everyone’s surprise it was CLEAR! I’m so thankful that you don’t have a tumor visible in your head, … Continue reading Sort of results

Tomorrow’s Plan

Dear Lexi, The day before any of your tests or scans is always especially stressful. I am a worrier and it seems to be amplified today with tomorrow’s MRI in our sights. Of course, today is Mother’s Day (5/10/2015). Instead of sitting around and letting my emotions take the wheel I decided we would use … Continue reading Tomorrow’s Plan

New Shoes

June 15, 2014   Dear Lexi,  I could definitely get use to these upbeat letters to you! More goodness is going on in your life. We FINALLY got you some new shoes! After what seemed like forever the shoes are here. The boys have taken to calling them your Franken-shoes. I think they’re quite adorable. I … Continue reading New Shoes

Results 5/21/2014

Dear Lexi,  See your smile?! That’s how happy we are that your tests came back all clear! More tests again next month. You are such a trooper. For all our friends and family that’s been praying, keep it up. It’s working. God is incredible. I love you so much baby girl! xoxo Mom   p.s. … Continue reading Results 5/21/2014

Long Overdue Update

Dear Lexi, It has been far too long since I wrote you a letter. Truth is I have been so disappointed lately. Not by you, you and your siblings keep me going most days. I am, however, beyond disappointed by the doctors that are suppose to be managing your care, keeping you safe from your … Continue reading Long Overdue Update

3 weeks past surgery

Dear Lexi, Well, three weeks has passed since your surgery and you are doing SO MUCH BETTER! I am so shocked by the amount of change we have seen in you. Changes we weren’t even expecting to happen. Daddy took you to your post op appointment about a week ago. Remember the swelling that we … Continue reading 3 weeks past surgery